Barcelona 2013
Barcelona 2013
Abstract book - Abstract - 23
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Conference Details
International Committee
Plenary Speakers
Presenting Speakers
Scientific Committee
Abstract #23  -  Law and Ethics
  26.6: Law and Ethics (Parallel) on Tuesday @ 11.00-13.00 in Auditorio Chaired by David Dalmau,
Vincent Douris

  Presenting Author:   Mr John Miller - Coalition for Children Affected by AIDS, Canada
  Additional Authors:  Ms. Chen Zhang, Dr. Yan Hong, Ms. Shaobing Su , Dr. Yuejiao Zhou,  
This presentation will describe how an international working group is filling a major programmatic gap by developing a toolkit to help carers working in community-based organizations with key populations--including people living with HIV--to make better, more ethical decisions when faced with competing choices or when the rights or interests of two people are in conflict. Findings from the consultation and the 3rd draft of the toolkit will be presented.
Method / Issue:
The project working group comprises organizations representing people who use drugs, sex workers, transgender people, people living with HIV, MSM and other gay men, care worker organizations, ethicists, major NGOs and funders. This group undertook a global consultation in 8 regions of the world with both carers and recipients of care. Based on the consultation, the guidance was drafted and is being revised six times over three years based on feedback from the working group, a key informant group, and based on pilot testing in five regions and four languages from May to August 2013. The toolkit will be translated into French, Spanish & Russian, ready for dissemination in March 2014, and then evaluated and revised again in autumn 2014. An interactive multi-media version will be available as well as a PDF version.
Results / Comments:
The global survey showed that carers working with children and families in stigmatized groups such as people living with HIV, people who use drugs and sex workers face difficult decisions--at least weekly and often daily. And, in the absence of proper guidance, carers can make decisions that are unethical, and often based on bias or influenced by stigma about who has the ability or right to parent. These decisions can do more harm than good.
Anchored by a code of ethical values and principles and using a simple four-step tool, the toolkit guides care workers in understanding how ethical decision-making differs from following the law, organizational policy, religion, culture or societal norms. They then gather all facts, challenge stigma, identify ethical principles in conflict, make a decision, and document, debrief and self-evaluate. Managers are encouraged to apply the tool consistently across staff teams.
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